SCAPE-1
SCAPE-2
SCAPE-CH
SCAPE-1
SCAPE-2
SCAPE-CH
SCAPE-1
SCAPE-2
SCAPE-CH
Eligible individuals receive at home an envelope with the invitation letter, the information sheet, the paper questionnaire and a pre-stamped return envelope. The invitation letter contains the ID number and the code needed to complete the questionnaire online.
The SCAPE-1, SCAPE-2 and SCAPE-CH surveys use the French translation of the English questionnaire « NHS Cancer Patient Experience Survey » adapted to the Swiss context. The questionnaire includes questions on what happened before the diagnosis, diagnostic tests, announcement of diagnosis, treatment decisions, care experiences in hospital as an outpatient and during hospitalization (including cancer operations, radiotherapy and chemotherapy), care and support at home, and follow-up after treatment. It also includes a question about the overall satisfaction and a space for free-text comments. The questionnaire finishes with a few questions about health and personal information such as gender and age.
The SCAPE-2 survey also included specific questions about the impact of the COVID-19 pandemic on cancer care.
The SCAPE-CH survey uses a shorter version of the questionnaire.
To ensure confidentiality of data, a coding procedure was implemented. The coding means that the personal information (name, address, date of birth, patient number) is replaced by a 5-digit "code." The data collected with the questionnaire contains this code; it does not contain a name or address. The key to the code (the link between the personal data and the code) is kept in a password-protected document only accessible to the local coordinator of the participating oncology center. The questionnaire data is then deidentified (i.e. the document with the key code is destroyed) after the data collection phase. It is then impossible to link answers to a name.
We comply with all data protection guidelines. All surveys are carried out in accordance with the requirements of the Swiss law. The competent cantonal ethics commission has controlled and approved the SCAPE-1, SCAPE-2 and SCAPE-CH surveys.
Arditi, C., Eicher, M., Colomer‐Lahiguera, S., Bienvenu, C., Anchisi, S., Betticher, D., Dietrich, P., Duchosal, M. A., Peters, S., & Peytremann‐Bridevaux, I. (2022). Patients’ experiences with cancer care in Switzerland : Results of a multicentre cross‐sectional survey. European Journal Of Cancer Care, 31(6). https://doi.org/10.1111/ecc.13705 (Link to article)
Arditi, C., Eicher, M., Junod, J., & Peytremann‐Bridevaux, I. (2023). Socio-demographic and health-related determinants of patients’ overall rating and experiences of cancer care. BMC Cancer, 23(1). https://doi.org/10.1186/s12885-023-11445-6 (Link to article)
Arditi, C., Eicher, M., Peytremann-Bridevaux, I., Berrut, S., & Rezzonico, V. (2024). Les enquêtes SCAPE en Suisse. Recueillir l’opinion des patient∙es : pourquoi et comment ? Soins en Oncologie. Journal professionnel de Soins en Oncologie Suisse, 1/2024, 30-33. https://serval.unil.ch/fr/notice/serval:BIB_C19FCBA446B2
Arditi, C., Eicher, M., Peytremann-Bridevaux, I., Berrut, S., & Rezzonico, V. (2024). Les enquêtes SCAPE en Suisse. Recueillir l’opinion des patientes et patients : pourquoi et comment ? Soins infirmiers. Revue spécialisée pour les soins professionnels en Suisse, 07/08/2024, 59-61. https://serval.unil.ch/fr/notice/serval:BIB_A0CDBF3032F5
Arditi, C., Walther, D., Gilles, I., Lesage, S., Griesser, A., Bienvenu, C., Eicher, M., & Peytremann‐Bridevaux, I. (2020). Computer-assisted textual analysis of free-text comments in the Swiss Cancer Patient Experiences (SCAPE) survey. BMC Health Services Research, 20(1). https://doi.org/10.1186/s12913-020-05873-4 (Link to article)
Jolidon, V., Eicher, M., Peytremann-Bridevaux, I., & Arditi, C. (2024). Inequalities in patients' experiences with cancer care: the role of economic and health literacy determinants. BMC health services research, 24(1), 733. https://doi.org/10.1186/s12913-024-11174-x (Link to article)
Rezzonico, V., Berrut, S., Bienvenu, C., Fiscalini, A., Ganz-Blättler, U., Eicher, M., Peytremann-Bridevaux, I., & Arditi, C. (2024). Les enquêtes SCAPE en Suisse pour recueillir l’opinion des patientes et patients et favoriser le partenariat patient-chercheur. Le Partenariat de Soin Avec le Patient : Analyses, 7, 44-63. https://doi.org/10.46298/pspa.14189
SCAPE-1 and SCAPE-2 were funded by the Swiss Cancer Research.
SCAPE-CH is partially funded by the Federal Commission for Quality (CFQ) and partially by the participating centers.